Breath. You or someone you love has been diagnosis pulmonary fibrosis (PF). What now? It’s time to get involved with a support group. Patients and caregivers need to learn how to take care of themselves. Someone they can ask questions too. Start connecting with others that have the same disease process. Learning when to call the doctor, what medication are available, when you need oxygen, and when is it time to contact hospice.
My name is Elaine. I am a registered nurse, a pulmonary triage nurse. The purpose of this blog is to answer some of the questions pulmonary fibrosis patients ask everyday. Working at Duke University, the physicians dependent on the triage nurses to educate their patients. Helping them understand pulmonary fibrosis and the progression of the disease.
I am not here to give medical advice. Nor can I advise you on medical treatments. That is not the purpose of this blog. As a nurse it would also be outside my scope of practice. I can however, give you information to make your own decisions, ssist you with what questions to ask your physician and give you the facts about this disease.
Please feel free to comment, ask questions and attend our support group. You can follow this blog by emailing me at firstname.lastname@example.org Thank you for caring and sharing.